This blog was started in largest part due changes in our family’s eating habits, changes in our way of life, changes that we can thank our son for leading us towards.
However, long before we began these changes, we were blessed with another child who was placed in our lives to grown and change us…from within.
Let me introduce to you, the light of our lives….Little Miss C!
She entered our lives on July 18, 2008. I was 37 weeks pregnant and had an ultrasound earlier that day. They had noticed that our baby was no longer growing significantly within the womb and believed that she would thrive better in the outside world. So they quickly scheduled a repeat C-section for me that very same evening.
Shortly after her arrival, while I was still on the operating table with my stomach cut wide open, before I even got a glimpse of my new baby girl, a doctor stood at my shoulder and told me that he believed our daughter had Down syndrome.
This did not come as a total shock to me since we were counseled following my 20 week ultrasound that they saw “markers” that may be an indication of Down syndrome. At that point in time we were encouraged to proceed with an amniocentesis, to determine if this was in fact the case or not. They even started speaking of termination options, before we even had the opportunity to process what they were telling us or respond. But it didn’t take any time to determine that termination was not an option to us, with or without Down syndrome. Therefore, there was also not an option in our mind to expose our fetus to any added risks in undergoing an amnio. We would just wait and see.
And see I did…the moment they finally placed that 6 lb, 3 oz little angel in my arms…I saw it, deep within her, speaking through her beautiful almond shaped eyes. My baby had Down syndrome. I didn’t need results of a blood test, I knew from the moment I met her. In all honesty, I felt disappointed, I felt scared. This was not what I had ordered, not what I wanted. I hate to admit that and I cried and beat myself up emotionally for days after her birth for those early not so positive feelings, but it’s only human nature. We want the best of everything, we want our lives to be “typical” or even better. But what I didn’t know at that moment was that is exactly what we got. We did get the best, we did get better than “typical”. We were given a blessing that I could never put into words. And the disappointment I felt… I now realize it wasn’t about what I wanted for me. It was a disappointment in what I wanted for her. The life I thought she was going to be missing out on in being “normal”. I feared for what her future would hold, I feared for her acceptance in society, I feared so much.
But what I’ve learned in just these four short years since, is how needless all my fears for her were. She has an exciting and bright future, she is accepted. Everywhere we go, she makes friends like she’s some sort of super star. She is an angel that God entrusted to me and my husband. She changes lives, she has changed me, she changes those around her. Being “typical” doesn’t fit her, she strives for “extraordinary”!
Today, 3-21, we proudly celebrate her 3rd copy of the 21st chromosome. Happy World Down Syndrome Day!
For additional information about Down syndrome, visit National Down Syndrome Society at www.ndss.org